Saturday, March 19, 2011

Paul Cardall's Music Video

so the other day I was on my facebook account and paul cardall posted a video of him playing a song titled "life and death" from his new album titles new life. and it was an AMAZING! video! I loved it!!

here it is....



also there is a video clip from the concert on February 14th, of a dedication to holly that I feel I should share...holly doesn't have much time on this earth left, and she is an amazing person with a strong will to fight and live. although I do not know her, she has touched my life.

here is that video...... scroll down to read the words below before watching the video..



what an AMAZING clip, and emotional clip from the concert. this brought tears to my eyes, and tingles up my spine. as you listen, you can hear her crying in the background....very emotional... and I was there on this magical night!!

what an Amazing woman she is...to read more on her story you can go to www.teamholly.blogspot.com, some of her friends have now set up this blog to help with costs of her medical bills, and essentialy her funeral that will be happening in the near future....please continue to pray for her family in this most difficult time that they may be comforted in their greiving when she is not with them. she is growing weaker, so her time is coming soon....

I just had to share this video clip with you from that night, Totally AMAZING!

Monday, March 14, 2011

hit with the unexpected

so before this weekend started (last friday) I started getting a sore throat, and thought that maybe I was just getting strep throat or something.....well my temperature was about 99.4, and I just was not feeling too well. my head was hurting as usual, and so I came home and thought I will just see if it gets worse. well saturday I woke up feeling worse, and I had been starting to get a cough going by then.....

sunday rolls around, and I was coughing up phlegm that was clear, and then we went to the doctors and after we got back from there it turned green....so I know something is wrong inside of me.

I still feel terrible today and have been blowing my nose like crazy, and have been almost ready to cough up one or both of my lungs, I cough so much, and so hard at times. everytime I lay down I start coughing, and everytime I try catching some sleep I start coughing, so what's the use of trying to get any rest?????

I did manage to catch a little nap today earlier, then I went and ate some yummy cream of chicken and mushroom soup for lunch (that was the only thing that sounded good) and I ate the whole can!! then I had a little thing of ice cream, and I have almost drank a whole glass of gatorade!! so we shall see how much more I can eat today!

I was supposed to have an appointment with my neurologist today, but I canceled it due to this terrible and nasty cold I have. hopefully one day I will get feeling better....now I really feel, and literally look like that guy pictured in one of my previous posts. my nose is so raw from blowing it and wiping it so much! oh well! I just hope to get feeling better soon!

so perhaps this is why I have felt so crummy for so long? who really knows?? I guess no one will ever know.....

I just hope I can make it through work tomorrow, that's all I care about, if I feel good enough to go!

Wednesday, March 9, 2011

Some More People in need of prayers

just a few days ago my mom was at a doctors appointment for some issues she has been having, and the doctor that did the tests on her seemed quite concerned this time around.....so the doctor sent my mom for some lab work, because what they found could be cancerous. so, we should know by tomorrow if what she has is cancerous. if it is I will post a little bit more. and after talking to her I will make sure it is okay that I share that information on this blog. but please keep her in your prayers that the results will show no cancer stuff and tha everything will be fine.

also tonight my mom had an incident at work, and now her esophagus is burning, and I am worried about that, and she said her back hurts and when she swallows stuff it feels like it is stuck in her back. this all happened because of a piece of licerice went down too soon....so hopefully she will feel better in the morning...I just wanted to cry tonight, I know she is scared for tomorrow, and then with that happening and her not feeling well from that episode. I just want to cry. I know that things could be a lot worse, some people have it a lot worse, but these things are still big things, because they are things (especially the first one) is one I have never had to deal with, and neither has my mom.

also, as I have mentioned my neighbors before, their son-in-law has a type of bone cancer that has been fixed, but, recently today I called over to my neighbors house who is the mother of the daughter who has the husband with cancer, and I learned that the cancer is back, and it is spreading to his lungs again. so he will be going in for more chemo and more surgeries soon...please keep them in your prayers, they are melanie and dan....

now, for an update one one person, LINDSAY!! she is getting better! to read more about her, you may click on the link on the side of my blog....this is great news on her....wonderful news!! they have figured out what happened, and to see the detailed post on that you can visit her blog.

and an update on me, my throat has been sore, and I have no idea why, and I can't sneeze, but today my head didn't really hurt too bad it was more of an ache feeling in the back of my head off and on a little bit during the day, but nothing like yesterday at all which was a HUGE BONUS! in my book!! if only my head can hold out a few more days until the 14th when I go to see my neurologist, and we can figure things out.

then we are also going to call the ear, nose, and throat guy and see about getting into him for my throat clearing problem, and see what that is all about, since my GI doctor didn't fix it...so more phone calls to doctors tomorrow.....my mom is calling one and I am calling the other, and then we are going to compare notes on phone calls, this should be interesting to see who can get ahold of which doctor....hopefully we will both have luck!!

tomorrow is back to the old grind, and then I am off on saturday, sunday, and monday!! I love three day weekends, they are the best!!!

have a great night!!

Tuesday, March 8, 2011

Update on me.......

so this post is kind of a continuation from yesterdays post, you know how I mentioned that things were going to change for the better for me. well my mom and I were talking last night about some changes we want to make happen, and since I have not been in school for so long (COLLEGE) that is I have had a lot of time to think about what I really want to do.

with things not going so well at my job at work, and people being so thankless, I have decided that I want a job in my future where people are going to appreciate the work I do, and where my people are going to love me back. and most of all I want a job that I am going to look forward to going to every day. not everybody can say they look forward to going to their job, but I want one of those kinds of jobs.

I have decided that I want a job in the medical field either working with newborns, or cancer patients, or even ones like lindsay in my previous post, and paul and all the other heart patients out there who are suffering. I have a lot to think about over the next few months, or while as I save up, and my mom and I are getting the funds in order for me to go back to school. but I do know that it is something in the medical field for sure.

I see all these sweet innocent little children in hospitals suffering and it breaks my heart, I wish I could help them so bad. and their parents would be so appreciative to me for helping save their childs life. so I know I want to do it.

I have looked into the Western Governers University and they are by far the cheapest school out there as far as any program goes for what I want to do. so they are the school I am going to stick with. I just wish I would have given this more thought two years ago, and not given the teacher thing so much thought....oh well, at least I have had a lot of time to think now, and save too, that way I don't have to get any student loans either....

anyway that is the update on me, my headache is back today, I knew it was too good to be true, but I am still up and doing stuff around the shouse today because stuff has to get done wither my head hurts or not....and I have the humidifier going in my room, so hopefully that should help, and who knows maybe it will be gome tomorrow????

P.S. Lindsay had her biopsy done this morning on her heart to check for rejection, please pray for no rejection.......results should be in later today hopefully!

Monday, March 7, 2011

Special Prayer Request.....

so there is this little girl by the name of lindsay, who is on the side of my blog list under the title " our gift from god" she is a fellow heart transplant recipient that I have been following, and this week has been a rough one for her. she is in the hospital right now in the ICU, and they are unsure of what may be wrong, but that it could possibly be r ejection of her donor heart, her family will know more after tomorrow morning's tests. please keep her and her family in your prayers this week.....

she is a sweet little thing, if you ever want to read her blog either click on the link on the side of my blog or go to http://lindsaysheart.blogspot.com/ her story is amazing. I have never met her, but she sure seems like it from her blog.

here are a few pictures of lindsay the "princess" as her family calls her....she is adorable!!





also there is another heart patient out there named holly that is not doing so well, who has been denied a heart transplant....we also need to keep her in our prayers too...she may not make it much longer...to learn more about holly you may visit paul cardall's blog which I also have a link to on my side bar....

I have another post coming very soon with another update about me and some changes I want to make in my life, for the better..... today has been a great day and I had no headache at work, and just felt okay, not totally back to 100% yet, but at least my head didn't hurt, that was a bonus for the week!!

Saturday, March 5, 2011

not feeling so great.....

so I have been feeling rather crummy for a week or so, amybe longer, and I have been to a few doctors this week, and I have an appoitnment with my neurologist coming up, but I still feel crummy. I have a pain in my chest, and all through out my collar bone area, and occasionally get apain in my sternium area. I just feel plain crummy.

I have just been laying in bed most of the day today. I just feel horrible. my head feels aweful and it hurts to breath. I don't know what is wrong.

when I went to my primary care doctor this week he said that it is probably influenza, and that my lungs looked good, from the x-rays that he did. just yesterday my mom and I looked up all the symptoms of bronchitis and I have all of them. so we are thinking that is what I have, but there is really nothing that can be done for that, other than to rest. but it could turn into pneumonia if it getd worse.

so this weekend I am just staying in the house and resting since I feel so crummy....

where could I have picked up bronchitis you ask? probably from my visit to the emergency room last thursday, who really knows, we have no idea, but all I know is that I just want to get feeling better because I am tired of feeling slugish and like my head is going to blow at some point....

I feel how this guy in this picture below looks.....



although today I have been able to get a few things done around the house, like getting the dishes done, cleaning half of my room, and playing the piano for a little bit. but I am still not feeling so great. so I am going to go reast for a little bit again and see if I can get feeling better again.

I will update again soon....

Monday, February 28, 2011

Scary Episode on Thursday 2/24/2011

so on thursday the 24th I was over at my neighbors house delivering her AVON order to her and I was just visiting with her, and earlier that day I was feeling a bit strange, but I didn't think anything of it. so when I was over at her house, and we started talking and got more into the convrsation my speech got more slurred, and I could not get my words out and my thoughts in my head to come out of my mouth, it was the most scariest experience of my life, I have never experienced anything like it.

so I was heading to the door and she gave me a hug goodbye and I walked home, on my way home my left leg started feeling weird and a bit numb, and weak and I so I went to lay on the couch and I called my mom immediately because I thought that maybe a seizure was coming on, and by this time my speech was still slurred, and a headache had hit and I was feeling terrible.

so then my mom got home, and I was nauseated, and my head hurt, and she had me take some advil, but that didn't help my head. so then later that night we ended up going to the primary childrens ER, with a bunch of other sick children all around me. and I waited for a doctor to come see me, and they did a cat scan and a shunt series and they said that everything looked good. they also gave me some fluids and some medcation for my head, and drew some blood, and then sent me home. but since thursday I have still had this linguring headache.

so, today we went and saw another doctor, and he gave me a prescription to help my head, and it has helped A LOT! after I am finished with the medication I am going to see how my head is then we will go from there, and decide what to do. by then I will have an appointment with my neurologist, and maybe he can schedule me for a spinal tap, because that can show different things with the fluid from my spin and my brain that is caused by my shunt.

so we shall see how this medication continues to help my head, and hopefully my head feels better even after I have stopped the medication. so I don't have to do anymore testing or go to anymore doctors appointments for a while.

that was just a really scary episode on thursday, and one I have never experienced before.

Sunday, February 20, 2011

Scope/Colonoscopy Update

this is going to be a long update so you might as well grab something to eat while you are sitting here reading this.

my preparation for the colonoscopy started on the 17th and all I could eat was broth and clear liquids, I think I only had three cans of broth the whole day, it was so disgusting, especially when you are forced to eat nothing else but that for a whole day! then at 5:30 that evening I started drinking the lemon tasting liquid drink for the colonoscopy prep, and let me tell you, as the night went on I started feeling worse and worse. at one point I felt like I was expecting, except there was no bulge poking out of my stomack, just the icky feeling in my stomach and a lot of uncomfortable pains!

then the rest of the night I was in and out of the rest room after that. and I only ended up getting about two hours of sleep tha night because my stomach just kept churning, and I had to keep running to the bathroom. finally I fell asleep at 3:15 AM!!

then my alarm went off at 5:45 AM because I had to be to the doctors at 7:00 AM for my 7:45 procedure. well they called me back at like 7:15, and were getting me preped for the procedure and putting the blood pressure cuf on my arm after I got the nice lloking gown on me, and then they put an IV with fluids in it in my arm, and then they asked me some questions and took my blood pressure before the procedure, which at the time it was 90/60 which is PERFECT! but I was a little worried because I had never seen it that low before, but the nurse didn't seem to concerned, so I didn't say anything more about that. so then they started wheeling me into the operating room and getting everything in the room set up,putting the oxygen cannula on my nose, and getting the Propofol ready for me to be put under while they do the procedure, well while they were doing that and doing other things my blood pressure was being tested and the first time it was 136 over some number, then I felt the blood pressure cuff squeeze my arm again and the reading was 54/63 which would have meant that I was near death. so the nurse went and got someone else while I was laying there, and they came back, and I think dr. heiner came in the room too at the time, but I do remember them saying that they could not do the procedure if my blood pressure was that low, so they undid the blood pressure cuff, and tightened it and then took my blood pressure again and my blood pressure read 110/63, which was completely normal, then they felt like they were okay to put me under and go ahead with the procedure.

the last thing I remember them telling me was that they were going to give me the sleepy medicine, and I told them I could feel myself falling asleep and I was soon out......then next thing I remember was waking up in recovery to my aunt and my mom, boy was I glad to see them after all i had been through in the operating room!

when dr. heiner walked in the room I was not nervous because I knew I was in good hands with him, so I knew that if anything were to go wrong while I was under, I would be taken care of. but I knew that no one would let that happen before I was sedated and put out. I trust doctor heiner completely, and was confident in him. he has always taken care of me during these procedures, as well as my aunt, so I knew there was nothing to worry about and I let him and his nurses do their job while I was falling asleep.

I am now just waiting for the results from the tests, and dr. heiner wants to see me in a few weeks, so we will see what happens at that doctors appointment. but that is my long update on my colonoscopy and scope.....until next time. I hope you all have had a great weekend!

Tuesday, February 15, 2011

Paul's Amazing Concert!

last night was another night that I did not want to end, it was another AMAZING night filled with all kinds of inspirational music and many inspirational moments! it was wonderful! I could have sat and listened to paul for another 3 or 4 hours that night! he is truely AMAZING!

the best part of the night was that I got to meet him, and get my picture with him. in the picure with him, I am grinning ear to ear, with the biggest smile on my face, it was another best moment in my life. paul is an amazing man, and if there weren't people standing in line I would have asked him if I could have given him a big hug. he is truely AMAZING! I know I keep saying that, but he is. his talent is so wonderful, and very inspirational, and for him to share it with so many people is AMAZING.

he released his new album called "new life" tonight, and even played a few songs from that beautiful album. if you have heard it, you know what I mean, it was BEAUTIFUL! I enjoyed every minute of that concert as well as my mom did, she loved it! we both didn't want it to end.

we got to go and meet paul cardall after the concert, and boy, what an AMAZING person he truely is. I know I have said that already in this post, but he is truely AMAZING. he is the most humble, and down to earth guy you will ever meet. what a wonderful person he is. I never knew he ws so great until I got to meet him last night. I always knew he was humble though, from what he has been through in his life. he was so kind, and was in no rush with me, which I thought was great!

here are a few pictures from tonight......







below is a picture of him up on stage alone after he received a standing ovation from the crowd and he played at least two more songs. I can't remember which song he was playing at this point, but I do know it was beautiful!



here he is signing my that I bought of his titled "before my heart stops"



and last but not least, here is a picture of Paul and I after the concert! when I finally got to meet him. as you can see I was pretty excited, and I had a grin on my face that went from ear to ear.....



what a fun night this was, and I will always remember it, thank you paul for such a great evening! thank you mom for the fun night together, I sure enjoyed the concert with you!

Sunday, February 13, 2011

the best night of my life.........

I have to say that through this week, last night was the most, humbling and most spiritual experience I wish you all could have experienced. I wish I could say so much about it, but due to confidentiality reasons in my mom's behalf as well as the other people in this thing I can't but, what I will say is there was one point in the program for the night that was truely AMAZING and brought tears to my eyes, the people of this program, including my mom are AMAZING!

there is a song that was played that is sung by celien dion called "A new day has come" yesterday was a new beginning for so many people. I encourage you to find that song if you don't have it and seriously lister to every word in that song. if you could have experienced what I experienced what I experienced yesterday you would have the same feelings about that song that I have now today, every time I hear that song, it brings tears to my eyes.

here is the video below...



yesterday was an amazing day, and I am so glad I could be a part of it to support my mom through the whole process of things she had to go through. she is one AMAZING person and I love her so much!

this song will forever have a whole new meaning and a whole new impact on my life, I loved it before this, but I love it even more now.

today has been a wonderful day, my mom and I slept in until after 12:00, and we have been listening to music, and having the best visit ver all day long, and we even got a few naps in today! it has been a wonderful day! tomorrow is going to be just as fun! we are so excited for paul cardall's concert tomorrow, we are beyond thrilled!

have a great night!