My Birthday Party

I just have to add today that yesterday was such a fun day, I sure did enjoy myself. I got some pretty fun stuff that I will be able to use now. I got some new address lables that are cupcake lables, my winnie the pooh lables are getting pretty old, and I am getting tired of them. so I am excited to use my new ones. I also got some cupcake checks :)

another thing I got was a cute cupcake piggy bank from my mom, which I love, it is so cute! and then I got some clothes, and a cute cupcake wallet.

and in the end of the night after we went golfing at mulligans, there was another surprise for me. my aunt created a scavenger hunt for me, which was so fun, and out of the clue she created I had to lead them to the different locations, and in a few of the clues were numbers that led to where the lext clue was, and I had to put those numbers in order, and I found that one clue was at my aunts house, and the other eventually ended up being at my house.

then I had to answer a question before I could see where the surprise was, and everyone took me down in the basement, and led me to the exercise room, and there sat a recumbant bike that I could sit and ride on and exercise on. I was so surprised, I had no idea what to expect.

so then I tried it out, and I loved it! it is perfect for me! it is just what I need! it is so quiet that no one would ever know I was down in the basement unless they actually walked down there themselves.

I have quite a few pictures to upload from yesterday, some my mom took, and some are on my phone. as soon as I gather all of those I will add them to this post. I hope you all have had a wonderful weekend :)

coming a long ways.....

in a year, I really feel like I have come a long way in so many ways, one way is that we recently found out some fantastic news about my shunt, and what a blessing that is to my mom and I today. I am truely greatful for that. I am greatful for the wonderful doctors we have been able to meet that are now in our lives to explain things the way we understand them. I really could not have come this far without my mom's support and without the support of my aunt, and most of all the support of my counselor, who has always, like my family believed I could do anything and has never given up on me. today I reached one of my greatest goals of all time, one I have been working on for almost 1 year, and I finally passed today!!! I passed the written test for my learners permit, and I received an 80% on it which is what I needed to pass!! after today, I know now I really can do anything, and no one is going to hold me back, I just have to keep believeing in myself that I can do it and then I just have to make it happen. I am really excited for my new adventures that will come with driving and being independent, now I just need to complete the driving instruction, then I can get my license.....one more step to go and I am there!!!

Miracles DO Happen........

so after today I really do believe I am a true miracle living. I have really refied all odds since birth with all that I have been through, and I feel so blessed to be here today. today my mom and I met with a new adult neurosergeon for me to check on the status of my Shunt, and he said that it has not been working for what looks like about 8 years. and so I have this tubing in my head just sitting there doing nothing. the fluid on my brain is like everyone elses, and the cyst at the stwm of my brain has not even grown in size at all. it is still very small. we saw pictures of my brain today, and my brain is formed a little differently than most peoples out there, but that is because of the cyst, and that too is a true miracle. when I was born my mom and dad were told I would be nothing but a vegetable in a wheel chair, and I feel so blessed to be where I am today. I have a job, and have been able to attend college, and learn like everyone else out there. I am so greatful for the amazing news we received today, and hope to have many more wonderful "normal" years in my life. if this is what normal realy feels like. I feel like I am begining a whole new chapter in my life. a lot was learned today, and I met a new wonderful doctor that I hope to have for the rest of my life until he retires. he truely cares about his patients. I am a true miracle....and I believe that after today.